Families and Carers Together Bucks (FACT Bucks) told us their members had reported gaps in health care provision and that there were poor, or no, transition arrangements when children with a special educational need or disability moved to adult health services.

What we did

We developed a survey with FACT Bucks and the Designated Clinical Officer (DCO) for Special Educational Needs and Disability (SEND) at Buckinghamshire Council.

In February and March 2024 we carried out a survey and/or interview with the parents/carers of 33 young people to find out their experiences.

Key findings

  • No-one we spoke to had been asked to complete the nationally recognised “Ready, Steady, Go” forms which are part of the “Transition: moving into adult care” programme. 
  • Most parents/carers told us they needed more support. 
  • 80% (20/25) of respondents told us they were dissatisfied with the transition/planning around the young person’s move to adult health services. Many did not feel included in the process. 
  • 70% of those yet to start the transition process did not know what to expect. 
  • 60% (9/15) of respondents said poor communication causes/caused the most concern. 

Key recommendations

Our recommendations to Buckinghamshire, Oxfordshire and Berkshire West Integrated Care Board (BOB ICB) include working with providers to: 

  • Make wider use of Ready Steady Go specifically designed for those over 11 years of age with a long term health condition. 
  • Improve communication between clinicians and parents/carers and young people ensure they are invited to attend regular meetings about transition and have a named person to support the young person during this. 

We recommend that Buckinghamshire Council: 

  • Promotes the value of a health or hospital passport, and where they may be accessed, ensuring information about transition is accessible, visible, and in a format that is appropriate to the individual.  
  • Ensures all parties are aware of the information sharing process to access carer contingency plans stored on hospital systems.  

To see the report in full, including all our findings and recommendations, click the link in the downloads below.

Downloads

Healthwatch Bucks Transition from children to adult health services report

Published on 1 May

Leave a Reply


Your contact details

If you would like us to contact you about your comment, please provide your details below. You can also contact us directly.

Privacy

Please review our data protection policy. By completing this form, you agree that you have read and understood the privacy information provided, and confirm you are over 18.

Your email address will not be published. Required fields are marked *

Subscribe to the Healthwatch Bucks email newsletter