Our new project looks at local young people living with a special educational need or disability. We want to hear about moving from children to adult secondary healthcare services.

Secondary healthcare services usually take place in a hospital. There are often separate ones for children and adults. Here care is provided by a specialist who has more expertise in the health issues they are facing. This is different to primary healthcare, e.g. GP surgeries and pharmacies, which provide care to everyone.

At a certain point, children’s health services are no longer suitable for a young person. Many then move to adult health services. This move is known as “transition”.  According to the Care Quality Commission (CQC), this can be “a vulnerable time for young people and their families”. Adult services may be structured and funded differently, and more care may take place outside a hospital setting.

We want to find out how this is working for people in Buckinghamshire so we can identify what’s going well and what could be improved.

What we will do

We want to hear from the parent/carers of people aged 14-25 with a special educational need or disability. The young person might:

  • have completed the move to adult health services
  • is currently in the process of moving
  • expect to start the process soon

Feedback as a parent/carer Now

  • If you need any further support to complete this survey, please contact us.
  • We will not share your personal information with anyone else or publish any details that could identify you.

Making a difference

We’ll use the feedback we receive to create a report on people’s experiences of transition

This will contain a set of recommendations that we’ll share with relevant organisations. These include GP surgeries, Buckinghamshire Council, Buckinghamshire Healthcare NHS Trust and the Buckinghamshire, Oxfordshire and Berkshire West Integrated Care Board (BOB ICB).

We will identify examples of good practice, which we will share with these services. If we find issues with the transition process, we will raise them so they can be addressed.

Published on 23 Jan (updated 5 Feb)

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