We want to find out about local people’s experiences of NHS continuing health care (CHC) – also known as all age continuing care (AACC).

The Buckinghamshire, Oxfordshire and Berkshire West Integrated Care Board (BOB ICB) has recently announced changes to the way continuing health care will be provided in Bucks.

What is continuing health care?

Continuing health care is provided for people who don’t need to be in a hospital setting but are not well enough to look after themselves.

It is a care package that funds the full cost of a person’s health and social care needs. This might involve caring for them in their own home, a nursing home or a residential care home.

To quality for continuing health care, a person must be assessed according to NHS criteria and identified as having a ‘primary health need’.

Changes to continuing health care

From 1 July, BOB ICB will be assessing patients for continuing health care. They will also manage placements for people who are deemed eligible. This work used to be done by Oxford Health NHS Foundation Trust (OHFT).

BOB ICB’s team of 110 staff will provide continuing health care services across Buckinghamshire, Oxfordshire and Berkshire West. Patients who are already receiving funding and those currently being assessed will not be affected by the change.

Patients and their families can expect their day to day dealings with the continuing health care service to continue as normal.

If you’re already receiving continuing health care, you will continue to deal with the same staff. You’ll be notified of any changes to important phone numbers, email addresses and postal addresses.

You can find out more about applying for continuing health care through BOB ICB on its website.

What we want to know

We want to know how well the system is working for Buckinghamshire residents as these changes to the system come into effect.

We’re looking for case studies that will help us to understand people’s experiences.

  • Are you are or a loved one currently receiving continuing health care?
  • Are you undergoing assessment for continuing health care?
  • Have you or someone you love applied for continuing health care and been told you’re ineligible?

We’re no longer seeking participants for this project. Thank you for your interest.

You can still tell us about your experience here.

Published on 25 Jul, 2023 (updated 9 Apr, 2024)

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2 comments on "Experiences of continuing health care in Buckinghamshire"

  • Commenter said on 7th August 2023

    Our family could write a book about our dealings with CHC funding in Bucks
    (it would be a best seller but rather depressing).

    [Some content withheld in accordance with our Comments Policy]

  • Commenter said on 1st October 2023

    We had dealings with Aylesbury Vale CCG a few years ago.
    Our relative had CHC funding withdrawn while being a resident in a nursing home. The very same year we found out that many people across Buckinghamshire had their funding taken away too even if they were deemed eligible.
    The CHC assessment our relative had for the funding was not fair or robust and no one from social services turned up to take part in the meeting. It was all very sad and distressing for the family. The assessor was not interested in finding out our relatives healthcare needs.
    We were told that you might get some help with funding if you are nearing death but even then it would be unlikely as this is hard to assess also. This is known as ‘fast track’ apparently. Even the doctor at the nursing home didn’t get involved with that. On the whole we feel there are appalling failings going on in care.
    I guess you could say ‘why are the appalling things that go on in NHS Continuing Healthcare Assessments not front page news’ ? The answer is almost certain a combination of things. Exhaustion on the part of the families going through the care funding nightmare who, during and afterwards, just don’t have the physical or emotional energy or will to fight on or tell their story afterwards; plus, a general lack of understanding and interest in the wider population and in the media. It’s a sad state of affairs.

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