Healthwatch Bucks is about to start a research project focused on young onset dementia. We want to find out about people’s experiences of living with this condition in Bucks, and also gather the views of their families and carers.

Our mission is to help improve health and social care services for the people who use them. We’ll collect your answers to our questions on young onset dementia anonymously, then add them to other peoples’ responses to form a report. This will contain a set of recommendations that we hope will improve care for you and other people in future.

What we want to know

For this project, we particularly want to know about the support that people with young onset dementia have received. For example:

  • What information they were given
  • Where or who they first went to for advice on living with young onset dementia
  • Whether the information and support on offer was age-appropriate and felt personal to them (and / or their family)
  • Whether the right support was made available at the right time.

Overall, we want to know what has worked well for people with this condition, and also what hasn’t.

Get in touch

If you were diagnosed with dementia before the age of 65 (even if you are now over that age), or if you know someone else who was, please get in touch.

We’d also like to hear about your experiences if you live with (or have lived with) someone with young onset dementia in Buckinghamshire.

We’re no longer seeking participants for this project. Thank you for your interest.

You can still tell us about your experience here.

Published on 22 Sep, 2022 (updated 9 Apr, 2024)

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