Over the past two years, a group of disabled people and allies from a range of organisations have been meeting to discuss concerns about the present state and future of independent living. The group’s first meeting was chaired by Baroness Jane Campbell, who chaired the Expert Panel advising the Independent Living Strategy during 2007.

One of the goals of the group is to understand what they and others might practically do in the short, medium and long term to help protect people’s access to independent living.

This is because disabled people and their families in many areas of the country have fed back to them that the choices available to them and the degree of control they are able to exert over the support they receive are shrinking.

Specifically the group wants to understand more about people’s experiences of diminishing choice and control and to get a sense of how commonplace a situation this is.  They are also interested in good practice examples of local councils that have done the opposite in recent times, expanding, rather than contracting, choice and control.

If you would like to provide your experience of support from your local council, please take part in this short survey. All responses will be anonymised.

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